Autism spectrum disorder
Autism, also termed autism spectrum disorders or ASDs
is a wide range or spectrum of brain disorders that is usually noticed in young children that decreases the individual's ability to communicate and relate emotionally to others.
The word Autism is derived from the Greek word “auto” which means “self”.
First used by Austrian psychiatrist Leo Kanner in 1943.
Usually appears during the first 3 years of life.
Autism Spectrum Disorder
Autism is neither Mental Retardation nor Mental Illness…
But may come with MR, seizures, cerebral palsy and LD.
A neuro-developmental disorder characterized by
- impaired social interaction,
- verbal and non-verbal communication, &
by - restricted and repetitive behavior.
Occurs about four to five times more often in boys than girls.
This disability may range from mild to severe.
Prevalence
The Center for Disease Control and Prevention (CDC) reports
1.5% of children in United States (one in 68) are diagnosed with ASD as of 2014,
a 30% increase from one in 88 in 2012(CDC, 2014).
There is no exact data in Nepal but Autism Care Nepal Society (ACNS) estimates that there are about 250,000 to 300,000 People with Autism (PWAs) in Nepal (ACNS, 2015).
Prevalence continued.
The flash report by Department of Education indicates out of total school going children about 1% children are with disability
26.6% among them are intellectually disabled.
In country report on Autism Education in Nepal, there is not exact number of students with autism but it is assumed that 14% among the intellectually disabled are with autism (Subedi, n.d).
Signs of Autism
No big smiles or other warm, joyful expressions by 6 months or thereafter
No back-and-forth sharing of sounds, smiles, or other facial expressions by 9 months or thereafter
No babbling by 12 months
No back-and-forth gestures, such as pointing, showing, reaching, or waving by 12 months
Early screening and diagnostic tools for Asd
Modified Checklist for Autism in Toddlers (M-CHAT)
Many false positives; follow up with interview
Scientifically validated for children ages 16-30 months old
American Academy of Pediatrics recommends that all children be screened for Autism at 18 and 24 months old.
According to DSM-V
Social Communication & Interaction-
Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:
Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction
Social Communication & Interaction – (continued)
Deficits in nonverbal communicative behaviors used for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through abnormalities in eye contact and body-language, or deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures
Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and in making friends to an apparent absence of interest in people
Behaviors, Interests, Activities —
Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of the following:
Stereotyped or repetitive speech, motor movements, or use of objects; (such as simple motor stereotypies, echolalia, repetitive use of objects, or idiosyncratic phrases).
Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change; (such as motoric rituals, insistence on same route or food, repetitive questioning or extreme distress at small changes).
Behaviors, Interests, Activities (continued)
Highly restricted, fixated interests that are abnormal in intensity or focus; (such as strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; (such as apparent indifference to pain/heat/cold, adverse response to specific sounds or textures, excessive smelling or touching of objects, fascination with lights or spinning objects).
Severity Level for ASD | Social | Restricted Interests and Repetitive Behaviors |
Level 1 | Without supports in place, deficits in social communication cause noticeable impairments. Difficulty initiating social interactions, and clear examples of atypical or unsuccessful response to social overtures of others. May appear to have decreased interest in social interactions. For example, a person who is able to speak in full sentences and engages in communication but whose to- and-fro conversation with others fails, and whose attempts to make friends are odd and typically unsuccessful. . | Inflexibility of behavior causes significant interference with functioning in one or more contexts. Difficulty switching between activities. Problems of organization and planning hamper independence. |
Severity Level for ASD | Social Communication | Restricted Interests and Repetitive Behaviors |
Level 2 | Marked deficits in verbal and nonverbal social communication skills; social impairments apparent even with supports in place; limited initiation of social interactions; and reduced or abnormal responses to social overtures from others. For example, a person who speaks simple sentences, whose interaction is limited to narrow special interests, and how has markedly odd nonverbal communication. | Inflexibility of behavior, difficulty coping with change or other restricted/repetitive behaviors appears frequently enough to be obvious to the casual observer and interfere with functioning in a variety of contexts. Distress and/or difficulty changing focus or action. |
Severity Level for ASD | Social Communication | Restricted Interests and Repetitive Behaviors |
Level 3 | Severe deficits in verbal and nonverbal social communication skills cause severe impairments in functioning, very limited initiation of social interactions, and minimal response to social overtures from others. For example, a person with few words of intelligible speech who rarely initiates interaction and, when he or she does, makes unusual approaches to meet needs only and responds to only very direct social approaches | Inflexibility of behavior, extreme difficulty coping with change, or other restricted/repetitive behaviors markedly interferes with functioning in all spheres. Great distress/difficulty changing focus or action. |
Management approaches
Family counseling and support
Several behavioral intervention such as-
ABA (Applied Behavior Analysis),
BMT or BT (Behavior Modification Techniques or Behavior Therapy),
VBA (Verbal Behavior Analysis) for language development and communication
TEACCH (Treatment and Education for Autistic and Communication related handicapped CHildren)
Management approaches contd…
Sensory stimulation and integration
PECS (Picture Exchange Communication System)
Structured teaching
Teaching life skills, vocational skills
Bio-medical treatment
Occupational Therapy
Social stories
Music and Art therapy
Environmental adaptation
Making use of visual and gestural communication such as PECS, symbols, sign language etc.
Limiting noise and visual stimuli
Making use of visually bare work spaces and physical barriers to separate work and play areas
Using small groups for instruction
Developmental, Individual-differences, & Relationship-based model (DIR)
Individual Education Plan (IEP)
about autism: fact or myth???
Caused by “cold” refrigerator mothers.
Children with eye contact do not have Autism.
Children who are “social” do not have Autism.
All people with Autism have extraordinary skills.
People with Autism just need love to get better.
People with Autism just need more discipline to get better.
Autism can be outgrown.
There is a cure for Autism.
Facts about autism/ASD
Multiple causes of autism: A genetic predisposition with something in the environment that triggers it.
Genetic
Environmental
Every child is unique.
Children with autism are not indiscipline.
It can be compared with a culture.
Autism can take emotional and financial toll on families.
Blue color symbolize Autism.
April is Autism Awareness month and 2nd April is World Autism Awareness Day.
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